This website for the UK public is developed and funded by AstraZeneca as part of a disease awareness campaign. It is for information only, not for diagnosis. If you are concerned about symptoms, please see your GP or another healthcare professional.

Finding support

Living with a progressive condition like ATTRv amyloidosis can make life more challenging.
Find out more about how to get support.

This website is about ATTRv amyloidosis caused by the V50M mutation.

banner banner

ATTRv amyloidosis can affect people in different ways. You may be experiencing symptoms yourself and need to make changes to your daily life. Or you may be supporting a friend, partner or family member. Here, you can learn more about the different types of support, information and advice available.


Practical day-to-day support

If you are registered as having a disability due to your ATTRv amyloidosis symptoms, you may be entitled to support for travel and leisure activities. Explore the sections below to find out more about the options available.

If you have physical symptoms that make moving around challenging, you may be able to get support.

  • Hidden Disabilities Sunflower offer patterned cards and lanyards for anyone who has a disability or condition that may not be visible. These can signal that extra help is needed. This could include being given a seat on public transport or getting extra support in shops, at work or in public spaces. Click here to find out more and sign up for a card
  • Blue Badges are available to help people with a disability or their carers use accessible parking spaces. This can be useful if movement becomes more difficult
    • – If you live in England, Scotland or Wales, you can apply for a blue badge here
    • – If you live in Northern Ireland, you can apply for a blue badge here
  • Disability Railcards allow a person registered with a disability and their carer (when travelling together) to get discounted train tickets
    • – If you live in England, Scotland or Wales, you can apply for a railcard here
    • – If you live in Northern Ireland, you can apply for a railcard here

Making time for wellbeing and enjoyable moments is really important for living well with ATTRv amyloidosis, whether you have been diagnosed yourself or support someone who has.

  • National Disability Cards are accepted in many venues across the UK. They can provide discounts for food shopping, high street shops, activities, travel and more. You can learn more about these on the National Disibility Card website
  • National Carers Cards help carers access discounts for a range of shops and provides proof of carer status at some venues and airports. Visit the National Carers Card website to find out more
  • Carer Identification Cards offer carers living in Northern Ireland discounts and support at some venues. Visit the Carer Identification Card page to find out more

There may also be the chance to access discounted tickets for anything from concerts to zoo visits, as well as sports activities. Please check ticket buying platforms for more information on whether they offer a disability discount.

Financial aid 

Find out more about whether you may be entitled to financial support if your life is impacted by ATTRv amyloidosis.

The main type of financial support available for someone with ATTRv amyloidosis is a Personal Independence Payment (PIP). A PIP is designed to support with the extra costs that come from living with a long-term health condition or disability. Your healthcare team can provide support letters and some clinical nurses may be able to help you to fill out the required forms.

VAT can also be removed from items that are purchased to support someone living with ATTRv amyloidosis. Find out more about what can be bought VAT-free and how to apply for this here.

Centres for Independent Living provide a range of practical and financial support for people with disabilities and carers in their local area. You can find out more about what is available in your area by searching 'Centres for Independent Living' online.

Home adaptations are available for people who need them. This might include anything from providing household gadgets to installing stairlifts. You can learn more about equipment and find out how to get an assessment on the NHS website.

For friends and family, a lot of time might be spent caring for someone with ATTRv amyloidosis, especially if it progresses to a serious stage. If you spend over 35 hours a week caring for someone, you may be entitled to a Carer’s Allowance. Check if you are eligible for this here.

  1. Hidden disabilities. What is the Hidden Disabilities Sunflower? Available at: https://hdsunflower.com/uk/. Accessed August 2026.
  2. GOV.UK. Who can get a Blue Badge? Available at: https://www.gov.uk/government/publications/blue-badge-can-i-get-one/can-i-get-a-blue-badge. Accessed August 2026.
  3. NI Direct. Blue Badge scheme. Available at: https://www.nidirect.gov.uk/information-and-services/motoring-travel-and-transport-people-disabilities/blue-badge-scheme. Accessed August 2026.
  4. National Rail. Disabled Persons Railcard. Available at: https://www.disabledpersons-railcard.co.uk/. Accessed August 2026.
  5. Translink. Concession Passes. Available at: https://www.translink.co.uk/tickets/travelcards/concession-passes. Accessed August 2026.
  6. National Disability Card. How to Use Your National Disability Card. Available at: https://www.disabilityid.co.uk/how-to-use-your-card. Accessed August 2026.
  7. National Carers Card. Available at: https://www.nationalcarerscard.org.uk/apply-online. Accessed August 2026.
  8. Belfast Health and Social Care Trust. Available at: https://belfasttrust.hscni.net/service/carers-services/carer-id-card/. Accessed August 2026.
  9. GOV.UK. Personal Independence Payment (PIP). Available at: https://www.gov.uk/pip. Accessed August 2026.
  10. GOV.UK. Get VAT relief on certain goods if you have a disability. Available at: https://www.gov.uk/guidance/vat-relief-on-certain-goods-if-you-have-a-disability. Accessed August 2026.
  11. Royal Devon University Healthcare. Independent Living Centre. Available at: https://www.royaldevon.nhs.uk/services/mobility-and-equipment-services/independent-living-centre/. Accessed August 2026.
  12. NHS. Home adaptations. Available at: https://www.nhs.uk/social-care-and-support/care-services-equipment-and-care-homes/home-adaptations/. Accessed August 2026.
  13. GOV.UK. Carer’s Allowance. Available at: https://www.gov.uk/carers-allowance. Accessed August 2026.

GB-77627 | August 2026 | To be reviewed August 2028