This website for the UK public is developed and funded by AstraZeneca as part of a disease awareness campaign. It is for information only, not for diagnosis. If you are concerned about symptoms, please see your GP or another healthcare professional.
As ATTRv amyloidosis is a rare condition, it can be hard to find people who understand what you are going through. Charities, support groups and carer organisations can help connect you with people facing similar challenges. On this page, you can learn more about the education, guidance and community these groups offer.
Amyloidosis UK
Amyloidosis UK is run by, and for, people living with amyloidosis. The charity is dedicated to raising awareness and improving care.
APP
The Portuguese Association of Paramyloidosis (APP) raises awareness of ATTRv amyloidosis and supports people living with the condition.
Carers UK
If you are providing care or support to a loved one, Carers UK may be able to offer advice and connect you with other carers.
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Amyloidosis UK
Amyloidosis UK is run by, and for, people living with amyloidosis. The charity is dedicated to raising awareness and improving care.
APP
The Portuguese Association of Paramyloidosis (APP) raises awareness of ATTRv amyloidosis and supports people living with the condition.
Carers UK
If you are providing care or support to a loved one, Carers UK may be able to offer advice and connect you with other carers.
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first-slide
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- Amyloidosis Research Consortium. Disease Overview: Hereditary Transthyretin Amyloidosis. Available at: https://arci.org/wp-content/uploads/2025/10/WEB-Booklet-1_hATTR_05052022-RC-1.pdf. Accessed August 2026.
GB-77630 | August 2026 | To be reviewed August 2028