This website for the UK public is developed and funded by AstraZeneca as part of a disease awareness campaign. It is for information only, not for diagnosis. If you are concerned about symptoms, please see your GP or another healthcare professional.
You may have lots of questions about what your diagnosis means. With the right support and specialist management, you can still live a full and meaningful life, especially if you are diagnosed early. On this page, you can learn more about living with ATTRv amyloidosis.
ATTRv amyloidosis management options
Anyone diagnosed with ATTRv amyloidosis in the UK will get care from a dedicated healthcare team. In the UK, there are a few centres providing expert care and management plans. The specialist National Amyloidosis Centre (NAC) in London supports these centres. You can learn more about the NAC by clicking here.
Currently, there is still no cure for ATTRv amyloidosis. But experts are developing options to help manage this condition. Through various treatments, healthcare teams are now able to stabilise or suppress the production of the TTR protein. This helps slow down disease progression and reduce amyloid deposit formation. Supportive care options include surgery, lifestyle changes, counselling and physiotherapy. To learn more about the condition and the role of TTR, visit our Understanding ATTRv amyloidosis page.
With the right care, symptoms can also be managed. Remember, you should always speak to your healthcare team for management information personal to you and your needs.
When you are living with a health condition, it is important to still make time for your general health and wellbeing.
Eating well: a balanced, healthy diet can help support your general, physical and mental wellbeing. Your healthcare team can offer guidance on an appropriate diet for you and your needs.
Staying active: some symptoms of ATTRv amyloidosis can make exercise more challenging – but that does not mean you can't enjoy an active lifestyle anymore. It is all about finding things that work for you. Exercises like swimming, yoga, walking and cycling are great low-impact options. Speak to your healthcare team for advice on what types of exercises might suit you best.
Relationships with friends and family
When living with a progressive condition like ATTRv amyloidosis, friends and family can offer vital support and care.
If you are living with the condition, try to be open and honest with loved ones. Tell them about how you are feeling and let them know if you need any extra support.
If you know someone living with ATTRv amyloidosis, here are some ways you can support them:
- Learn about ATTRv amyloidosis
- Work with them to set up and keep a routine
- Advocate for your loved one with their healthcare team
- Help them to keep track of their symptoms
- Plan how to approach potential problems that could arise in the future
Keep in mind that ATTRv amyloidosis can be stressful for both the person with the condition and their family or friends. There are resources available to support this journey, such as mental health services and support groups. To learn more, explore our Support groups page.
Getting support from work
If you are living with ATTRv amyloidosis, you may need to make changes to your working patterns. You might have to attend a lot of healthcare appointments. Depending on your symptoms, you may also need to take sick days more often.
Workplaces have adjustments in place for people with long-term conditions like ATTRv amyloidosis. These can include:
- Physical adaptations, such as changes to the physical workspace or providing more suitable equipment, like a more supportive chair or adjustable desk
- Changes to working patterns, such as changes to a person’s working hours or job role
Part-time work, flexible hours and working from home may all support a life with ATTRv amyloidosis. If you have been diagnosed with ATTRv amyloidosis, you may find it helpful to let your workplace know as soon as possible so they can discuss any possible adjustments.
Financial support may also be available if a person makes the choice to stop working. You can find out more about this here.
If you have any feedback on this resource, please fill in our questionnaire by clicking here.
Real-life stories
Hearing from other people who have been affected by ATTRv amyloidosis can help you see what living with the condition could mean for you. Stories from others will be coming soon.
- UCL. National Amyloidosis Centre. Available at: https://www.ucl.ac.uk/medical-sciences/divisions/national-amyloidosis-centre. Accessed August 2026.
- NHS. Amyloidosis. Available at: https://www.nhs.uk/conditions/amyloidosis/. Accessed August 2026.
- Amyloidosis UK. About ATTR Amyloidosis. Available at: https://amyloidosisuk.org/about-amyloidosis/types-of-amyloidosis/attr-amyloidosis/. Accessed August 2026.
- NHS. How to be happier. Available at: https://www.nhs.uk/mental-health/self-help/tips-and-support/how-to-be-happier/. Accessed August 2026.
- Obici L, et al. BMJ Open. 2023;13(9):e073130.
- Acas. Reasonable adjustments at work. Available at: https://www.acas.org.uk/reasonable-adjustments. Accessed August 2026.
GB-77626 | August 2026 | To be reviewed August 2028